St. Patrick's Day Fun with the kids

Comments

Post a Comment

Popular posts from this blog

Life has been non stop... SPML AGAIN and NAPA has begun

Image
I always want to come here yet never have the time. I honestly do not get any time for myself. Having 5 kids and their sports and therapy all while running a business leave very little time for me. Brendan joined Drama this year as well as basketball. Some days he had both! He was in a school play (very small part) but it was so great to see him part of something like that. He absolutely loved it. They did Little Shop of Horrors and it was an excellent play. His siblings wanted to watch it multiple times and then we had to rent the movie. Brendan's challenger basketball team won the state champs! They rode the bus back to school with a police escort. HOW COOL?! Brendan has been growing like a weed. He hit 5' tall which means he is catching up to me! His knees became crouched so badly again that I knew he needed SPML, again. This was his 3rd round. Although his spasticity is gone he still has some tone issues and his tendons don't grow properly due to having spasticity for 1...
Read more

Let's talk braces. AFO, DAFO, SMO

Image
Brendan has worn leg braces since he was just 2 years old! He was always put into AFO's. AFO is short for Ankle Foot Orthosis. I never knew any better. I thought the orthopedics and doctors knew what they were doing and that was the brace he needed. 12 years later I realize I completely disagree with putting your child into AFO's. It completely limits them and does NOT allow them to gain any muscle mass. I was told to have Brendan wear them all day long. Always while walking, always while in his stander, basically he shouldn't do anything without them on. I wasn't as internet savy then as I am now. I did try to research and belonged to some support groups but honestly life raising a disabled child was so different 12 years ago. I am sure you learn as you go but often we just listen to these professionals and truley believe they know best. 12 years ago Brendan had zero muscle mass in his legs. He serioulsy had chicken legs. His thighs were the almost the same size as his...
Read more

Brendan's battle with the bathroom! & The Bright Side!

As Brendan is getting older he is having some more issues with using the Bathroom. He simply does not want to poop. He refuses, he holds it, he has accidents. It is beyond frustrating because he is almost 12 and has been toilet trained since age 4. This has been going on since last January and we are at our wits end. We have tried everything under the sun to get passed this ordeal. We have punished, we have ignored, we have rewarded. We have tried natural laxatives. I have questioned puberty causing it and come up with every excuse in the book. Nothing has worked. Nothing makes sense. However, we finally realized it is more of a control issue. I have taken him to a GI Dr. and a nutritionist trying to figure some things out but in the end we realize he wants to have control over something. Kind of like people with eating disorders. It isn't about the food, it is about control. Brendan needs assistance with everything and he can't do what he wants all the time because of all the...
Read more