Fundraising

">
We have set up a fundraiser to help with Brendan's SDR surgery. I am planning on staying in St. Louis with him for 3 weeks with my newborn baby. This way he can receive amazing therapy and kick us off to a great start! I have ordered a ton of therapy/gym equipment for our house and am looking for a personal trainer for him. We received some terrible news at his SDR evaluation. His left hip is now out of place and it looks like he will need a left hip osteotomy. I am beyond upset about this and can only hope that SDR will help reduce the spasticity that is causing his left hip to pull out of the socket. I think I fear the hip surgery more than the SDR surgery.

Brendan has a new PASS worker. His prior one ended up working full time in her career and had a baby girl so she could no longer work with Brendan. He has adjusted very nicely and quickly especially after not having anyone for a few months. I am so grateful I found someone since being pregnant really hinders what I can do with him. He has gone on many bike rides and walks which is great for him. He has been putting away his own laundry and doing a few more chores. He requires so much assistance and I think every disabled child deserves their own personal PASS worker.

I am trying to come up with more fund raising ideas so if anyone has a good one please let me know. I am looking into candy bars or lollipops and possibly a father daughter dance.

Comments

Popular posts from this blog

Life has been non stop... SPML AGAIN and NAPA has begun

Let's talk braces. AFO, DAFO, SMO

Oh these boys and their speech!