How MY life is different
Running out to the store just to get milk with a child in a wheelchair is not as easy as it seems and is avoided at all costs!
My back, arms, and neck often hurt or are soar and it is just part of life now. I remember one of Brendan's PT's telling me that one day my body would start to feel it from lifting him and all his equipment. I didn't think that day would come so fast.
Weekly 45 minute one way commutes to therapy have become part of my routine and I don't even think about them anymore.
I have constant guilt when I don't exercise and stretch him everyday but sometimes the days get away from me.
Family vacations have to be thought about before booking because we can't just go anywhere. Not to mention there is only two of us and 3 of them! Maybe that will get easier as the girls get older.
I recently realized I need to start asking for handicap accessible rooms because recently we were placed on the 2nd floor and carrying his wheelchair up a flight of stairs should never happen again if at all possible.
When I had my first child I had no idea how many times in one week I would have to bring my kid to the bathroom and I honestly don't look forward to how many more times that count will become over the years.
Last night I wished out loud to my husband that 'he could get his own pajamas on'. I did not feel like doing it at all! I realized this dream is far off when he couldn't even get his shirt off.
Our library is NOT handicap accessible yet we are going today because all 3 kids signed up for the summer reading program. I don't feel right bringing the other two to pick out books without bringing him. Sooooo we go today which means I have to carry him down a flight of stairs and then carry his walker. Why not add to my soar neck today?
Wheelchairs effect everyday activities and decisions. Walkers effect everyday activities and decisions. Having a child with a disability effects everyday activities and decisions but I will continue to try and do everything I possibly can with him because I want him to experience life like every other child.
I think I will just have my husband go grab that milk for me! :)
My back, arms, and neck often hurt or are soar and it is just part of life now. I remember one of Brendan's PT's telling me that one day my body would start to feel it from lifting him and all his equipment. I didn't think that day would come so fast.
Weekly 45 minute one way commutes to therapy have become part of my routine and I don't even think about them anymore.
I have constant guilt when I don't exercise and stretch him everyday but sometimes the days get away from me.
Family vacations have to be thought about before booking because we can't just go anywhere. Not to mention there is only two of us and 3 of them! Maybe that will get easier as the girls get older.
I recently realized I need to start asking for handicap accessible rooms because recently we were placed on the 2nd floor and carrying his wheelchair up a flight of stairs should never happen again if at all possible.
When I had my first child I had no idea how many times in one week I would have to bring my kid to the bathroom and I honestly don't look forward to how many more times that count will become over the years.
Last night I wished out loud to my husband that 'he could get his own pajamas on'. I did not feel like doing it at all! I realized this dream is far off when he couldn't even get his shirt off.
Our library is NOT handicap accessible yet we are going today because all 3 kids signed up for the summer reading program. I don't feel right bringing the other two to pick out books without bringing him. Sooooo we go today which means I have to carry him down a flight of stairs and then carry his walker. Why not add to my soar neck today?
Wheelchairs effect everyday activities and decisions. Walkers effect everyday activities and decisions. Having a child with a disability effects everyday activities and decisions but I will continue to try and do everything I possibly can with him because I want him to experience life like every other child.
I think I will just have my husband go grab that milk for me! :)
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