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Showing posts from November, 2012

Happy 10th Birthday Brendan!

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Wow how can it be that 10 years have gone by?! It feels like time has flown by but then when I really think about everything we have been through over the past 10 years it feels as though it should be much longer. I have started to lose count of surgeries and become much less stressed about upcoming botox injections. I can say I have become used to our life and I can't imagine it any other way. I would love to take away all the pain and struggles you have but I know that isn't possible so I just try and make your life the best it can be! What have we been through over the past 10 years..let me revisit all the 'lovely' memories * Born on Thanksgiving Day at 33 weeks and weighed a whopping 5 lbs 5 oz! * You were born blue and had to be rescusitated, however I was never told this..I read this in your records. * Only spent 11 days in the PICU! We had no idea cerebral palsy would be our future. * Crankiest baby alive for the next few years...we found out why little by litt...

Parent Teacher Conference

I met Brendan's teachers tonight. I have always been impressed with this school especially since it is public. They really seem to know what they are doing for these special needs kiddos. This year started out a bit rocky. His special needs teacher quit and they took a while getting someone in his classroom...she just started today. However, after today's meeting I feel okay about it. He is able to be with his typical peers for morning work, social studies and science. Today I found out his favorite subject is Science and that he LISTENS and ANSWERS questions in class appropriately. The teacher wants him in the typical classroom more often because some of the other kids in his special needs class are not verbal and she feels Brendan needs more interaction with his peers. I already LOVE HER! She is looking out for my son and sees that he is smart even though he doesn't always come across that way. She knows he can't write or read but he can comprehend and be still be an ...

I dreamt that Brendan walked....again

I have these dreams occasionally. They are bittersweet. I never really see Brendan upright without equipment so it is unusual to see him in this stature. I am not even sure he really looks like him in my dreams. It is almost impossible to picture what he would look like standing and walking. His PASS worker has been practicing with him lately to stand up without holding onto anything. She kneels and he stands facing her with his hands on her shoulders. When he is ready he lets go. He does not last very long but it is a start. Something he could never do before. Confidence is a huge issue for some reason. He doesn't think he can do it so we tell him to say "I can do it" to help him feel more confident. I think it is helping because I saw him stand and it was for at least a good solid second. Yes just one second...doesn't that sound strange? It was really exciting to see and I feel like just maybe one day he will stand for 5 seconds and then 10 and then who knows how lo...